Egull1's Journal, 01 Jul 17

Hope it calms down. One of the things that has helped me majorly, if you are not supplementing with magnesium currently, you might read up on it and try it. 🤷🏻‍♀️The Magnesium Miracle, by Dr. Carolyn Dean. It has stopped the stomach migraines and is bringing feeling back to my "neuropathy" plagued feet. Plus my upper pallet in my mouth and other parts of my body I didn't realize my nerves had cut off sensation to because of shortages of the mineral. It's very strange to have parts of your body waking up again. 🙋🏻 I'm also trying to implement a stretching routine to increase the space around my joints as per "Forever Painless," by Miranda Esmond-White 🙆🏻Good luck, Hon! 

It looks like they spotted an abnormality on T10 and decided I needed to go in for a second MRI!! This time they put me in a smaller one, head first. But I took a bunch of lozepam to relax, they pulled out warm blankies, head phones, and soft 🎶 to keep me calm. That one lasted an hour, the first MRI only lasted 20 minutes.  The long and short of it is, the neurologist and internist are going with acute transverse myelitis. Interesting enough, only 1 and 8 million people get it,  so I guess my name got pulled from the hat 🎩 this time. However, when they do find a profile that fits this prognosis, it's usually a pre curser to something else that's going on, which is what they're trying to find out.  The most common disease it partners with is MS, but there's a slew of other issues it partners with like west Nile, or other autoimmunes like RA . They're leaving no stone unturned trying to figure it out. I'm set to give a pint full of blood for tests tomorrow, another MRI of my brain and brain stem, and a spinal tap.  In the meantime, they are intravenously providing a high dose of steroids over the next 5 days in hopes to bring the swelling down in my spinal chord  so I can start feel some sensation in my legs again. I will have to see a physical & occupational therapist to help out as recovery can take a few months and some of the sensation I lost I may never come back, but hell I'm still walking, just a bit slower but I'll take it! The priority right now is to find the source! I see no reason for it to keep me from working since I sit most of the day, but no I won't be running 🏃 any marathons right now, lol. I hope everyone is having an awesome 4th of July weekend. Mine sure turned out interesting! Ha!  

Well, at least they are going at it aggressively. Speaking as someone with two autoimmunes, they seem to run in packs and I'm not really sure in my own mind that they aren't all the same thing. A disease of the immune system messing up. They just label it for what it targets to take out at the current time. I hope the MS comes out negative for your sake, it can be nasty to deal with, but I know you'll deal with what you have to. Good luck. And good wishes for the swelling to recede and feeling to come back. 

Thank you SMP! I'm down one dose of steroids, just for to go! don't notice any difference yet, but realize with 4 doses to go I need to give it time ❤️ 

I agree with Smprowett, as a fellow autoimmune person. They do seem to have many friends that all gang up at one time. I know it feels scary right now, but really strive to live in the moment, one day at a time. It could take a while to figure it all out. Thoughts are with you!